We are aiming to establish a registry of all patients with diagnosed vascular Ehlers-Danlos Syndrome (vEDS). The purpose of this is to ensure that we are providing best-practice care for patients with this devastating condition.
https://rarediseases.info.nih.gov/diseases/2082/vascular-ehlers-danlos-syndrome
Common signs/symptoms of vEDS:
Management
Support organisations
Common signs/symptoms of vEDS: